Other Blogs

Here are someĀ links to other blogs where people talk about their experiences with Crizotinib.

7 Responses to Other Blogs

  1. admin says:

    I recently found an great site (not really a blog), UpToDate.com, that is written and reviewed by doctors who specialize in treating particular forms of disease.

    The site has a page focused on ALK+ non small cell lung cancer written by Dr. Alice Shaw from Massachusetts General Hospital and Dr. Benjamin Solomon from Peter MacCallum Cancer Center (see link below). The target audience appears to be oncologists treating ALK+ patients, so it uses some terminology that average readers will not understand but those readers will be able to understand most of the main points.

    The goal for the site appears to be to provide very comprehensive (relatively up to date) info on everything relevant for the diagnosis and treatment of ALK+ patients including: basic research, clinical trial data, treatment recommendations (including surgery, radiation, chemotherapy, and targeted therapy), data on side effects, and FDA status.

    I would highly recommend this site as a very good starting point for new patients and their families to educate themselves about ALK+ non small cell lung cancer. Also probably a good site for ongoing patients to check from time to time.

    http://www.uptodate.com/contents/anaplastic-lymphoma-kinase-alk-fusion-oncogene-positive-non-small-cell-lung-cancer?

    To see article click on any section heading.

  2. admin says:

    Inspire.com has become a great place for ALK+ patients to ask questions and share information.

    There is one page where you can find links to all ALK related discussions. It is: http://www.inspire.com/groups/lung-cancer-survivors/topics/alk-mutations-and-lung-cancer/

    One discussion in particular has been running since January 2011 and is frequently posted to. It has over 4,000 posting. Here is the link: http://www.inspire.com/groups/lung-cancer-survivors/discussion/anyone-on-pf-02341066-crizotinib-alk-gene-part-3/

  3. admin says:

    Here is a blog thread specifically for people who are ALK positive to track info on clinical trials. http://cancergrace.org/forums/index.php?topic=6352.0

  4. DavidF says:

    lungevity.org go to
    http://lungevity.org/l_community/index.php
    and
    http://blog.lungevity.org/

    http://cancergrace.org/lung/
    Up-to-date and authoritative medical info and lots of archives. Do a search for ALK or PF02341066 or Crizotinib.

    I hope this helps.

    David,
    Chicago, USA

  5. admin says:

    Here is a blog by Linnea Duff who started on Crizotinib (then known as PF-02341066) in early October 2008. She is among a very small group of patients who have been on Crizotinib from the beggining.

    http://lifeandbreath.wordpress.com/category/treatment/alk-mutationspf-02341066/

Leave a Reply